Coinsurance? Premium tax credit? HMO and PPO?

Swimming through the health insurance word soup can be frustrating for anyone. Even though I cover health, I couldn't define "cost-sharing reduction plan" until I Googled it just now.

And it seems I'm not the only clueless 20-something here. Young adults, who generally have little experience managing their own health care expenses, are finding it especially hard signing up for insurance under the Affordable Care Act, according to a study published Tuesday in the Journal of Adolescent Health.

Researchers at the University of Pennsylvania wanted to see how well young people would fare navigating through HealthCare.gov. So they rounded up about 30 young adults, aged 19 through 30, who were interested in enrolling for insurance. They were all college-educated, and based in Philadelphia.

The researchers sat them in front of computers and observed as they navigated through the online enrollment process. "We asked them to think out loud, so we could really capture their experience," says Charlene Wong, a pediatrician at the University of Pennsylvania who lead the study.

Wong and her colleagues interviewed the participants right after they completed their enrollment and again a month later.

"Many of them said, 'You know, I've never tried to do this before and it feels a little bit overwhelming because there's so many different options,' " Wong says.

Half of the participants couldn't define "deductible," and three quarters couldn't explain "coinsurance."

Plus most of them were unaware of subsidies for insurance, and they didn't have an idea of how much insurance plans generally cost. Most thought that an affordable plan cost less than $100 a month — but the cheapest plan in Philadelphia cost $187 monthly, without tax credits.

The study involved college-educated, tech-savvy young people, Wong points out. "Considering that, we were really surprised at just how much they didn't know."

Previous surveys have turned up similar findings. The recent study is small, Wong says. But it takes a more in-depth look at how young people feel about the enrollment process.

The results suggest that the government as well as insurance companies need to do a better job of educating people about the basics, Wong says. Making the process easier for young people is crucial to the success of Obamacare, she points out, since more healthy young Americans need to pay into the insurance system to help cover the costs for older, sicker people.

Of course, getting anyone to retain information about insurance isn't easy. "It's dry material," says Erin Hemlin the health care campaign director at Young Invincibles, an advocacy group that helps educate young people about health policy.

Young Invincibles has tested out some creative ideas to get people interested, like sponsoring concerts. They conduct weekly Twitter chats. And they've developed an app that helps guide people through the enrollment process.

If the process is confusing for the young people in this study, Hemlin says, it's even harder for demographic groups.

"I spent about four months in Texas during the first open enrollment period helping a mostly low-income, Latino population apply for insurance," she says. "It was so disheartening, because these insurance terms are confusing in English. And they don't translate well at all."

Lots of young people she encounters are intimidated by the process so they're not able to take advantage of the services available to them, Hemlin says. "This lack of health insurance literacy is the biggest barrier right now. I want more young people to realize 'Oh, wait, I actually can afford this.' "

Copyright 2015 NPR. To see more, visit http://www.npr.org/.

Transcript

STEVE INSKEEP, HOST:

Next, a small study offers some clues as to why it's so hard to get young people to sign up for health insurance. One problem we've known about is that many don't think they need it. They're young. They're healthy. NPR's Maanvi Singh reports on another problem - they're confused.

MAANVI SINGH, BYLINE: Coinsurance? Premium tax credit? HMO and PPO? I asked some of the sharpest interns around the NPR office if they knew any of these wonky words.

Do you know what a PPO is?

UNIDENTIFIED WOMAN #1: No.

UNIDENTIFIED MAN #1: Paying people for operations.

UNIDENTIFIED WOMAN #2: Predatory peacock organization (laughter).

SINGH: It actually stands for preferred provider organization. But these 20-something interns aren't the only ones confused by health insurance jargon. Researchers at the University of Pennsylvania sat and observed as 30 college-educated young adults living in Philadelphia tried to sign up for insurance on healthcare.gov. Charlene Wong, who led the study, says most of them struggled.

DR. CHARLENE WONG: Many of them said, you know, I've never tried to do this before and it feels a little bit overwhelming because there are so many different options.

SINGH: Half of these young people couldn't define deductible, which is the amount patients have to pay before their insurance will start to pick up the tab. And the majority had no idea what coinsurance was. That's a percent of your health costs that you pay. Stir some math into this insurance word soup and Wong says that's when you run into real trouble.

WONG: Big numbers, like a deductible of $6,000 with a 20 percent coinsurance and a $6,000 out-of-pocket maximum, you know, it's hard for people to try to do that math.

SINGH: There are some tools available for the totally clueless. An advocacy group called Young Invincibles has come out with an app to help, and you can look up a glossary of terms on healthcare.gov. But Wong says the government and insurance companies need to do a better job of explaining the basics, especially to younger people who are buying insurance for the first time. After all if more healthy, young Americans sign up for insurance, it'll help cover the cost for older, sicker people. Maanvi Singh, NPR News. Transcript provided by NPR, Copyright NPR.

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